Krásne fotografie, ktoré oslavujú deti a dospelých s Downovým syndrómom

 

 

 

 

 

 

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Október je Mesiac povedomia o syndróme Downovho syndrómu – príležitosť oceniť neuveriteľné, schopné deti a dospelých žijúcich s Downovým syndrómom. Podľa CDC sa v Spojených štátoch ročne narodí asi 6 000 detí s Downovým syndrómom. Postihnutí vyvíjajú extra chromozóm, čo je medicínsky známy jav ako trizómia, ktorý môže spôsobiť rôzne vývojové problémy. 

Aj keď deti a dospelí s Downovým syndrómom zdieľajú rovnaké genetické podmienky, je dôležité pamätať na to, že každý, kto žije so zdravotným postihnutím, je jedinečný, so záujmami a osobnosťou všetkých svojich vlastných, a tieto krásne fotografie dokazujú, že existuje

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Day 9: Our life is normal (whatever normal means)! We do all the things other families do. We go to the pumpkin patch, the beach, zoo, vacation, etc. Emmy has friends her age both with and without Down syndrome and she also plays outside with the neighborhood kids. She throws toddler tantrums but not very often. She’s sweet with her brother with the occasional spice. Raising her is no different than it is to raise her brother, she just keeps us busier. Sure we go to therapy but that’s not mandatory and not everyone with DS chooses to do so. We go to many doctors appointments but mostly just as precaution. She doesn’t hold us back in anyway and if anything she opens us up to more amazing life experiences. #theluckyfew #thislifeisbeautiful #downsyndromeawarenessmonth

A post shared by Amy (Emerson's Mom) (@uplifeofemmyjoy) on

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I’ve had a lot of questions about how our girl did at her evaluation meeting this week. I’m so proud of her! In six months Rory saw a 15% overall improvement 👏🏼👏🏼 The biggest “concern” is speech. Speech effects scoring in all areas of development. Rory is currently signing, speaking (10–15 not clear words) and providing visual cues. She has ALOT of frustration around our lack of understanding regarding what she’s trying to express. This can lead to behaviors that aren’t all that fun. So we will be in speech for 3-4 hrs a week formally, I will continue to work with her at home. Her gross motors is good, but needs smoothed out. She’s unable to walk for long independently and has trouble transferring to different surfaces (girl comes to a door and will lay down on her belly 😳). We will work on encouraging her to pick up those knees, build endurance and confidence in gross motor. Fine motor will also be all about enhancing what she’s got. She’s very good with correct pointing and pinch grasp, but needs to work on coordination/motor planning. Her biggest win was social emotion and cognition. Rory understands directions, has great problem solving skills and decent focus. It’s also no secret she’s obsessed with people and interacting with them. She will respond to interactions appropriately, laugh, smile and try to make you do the same. We are looking at four therapies weekly ( PT, Speechx2, MNRI, hipo therapy and twice a month check in with child development). I’m really excited to say rory will be starting school twice a week for a few hrs. I think we will see so much growth in the coming months! Also, momma didn’t cry 👏🏼👏🏼👏🏼 I went in with my draft goals for Rory’s next six months and kept it together the whole time. It went really well. So thankful for our team and can’t believe we are entering our last year with them.

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Yet again River has showed me that I should never doubt him! I've been putting off putting him into swimming lessons for about a year now. Reason being that even though I know he is a very capable little swimmer, his desire to listen to instructions was pretty questionable. Well his ability to listen and follow direction has come on leaps and bounds so I decided to give it a go, thinking that if it didn't work we could try again another time. – I've been so nervous all week. I always see parents questioning whether they should choose mainstream or additional needs activities, but for us there's no choice. River has to be included in mainstream or nothing, there's no back up. If swimming lessons didn't work then there would be no lessons, end of story. And when I spoke to the instructor before hand I could sense he was unsure, not for any other reason than the fact he's never done it before and he'd never met River. I get that and I appreciated the fact that he welcomed him anyway. – Well River was fantastic! He listened and followed instructions ( well, kind of 🤣🤣. No less than any of his peers anyway!). And the best bit for me is that he was absolutely included in the group and enjoyed himself massively. Look at that smile! The swimming instructor even called me over and said "theres nothing to worry about here, he's strong and he'll settle in well. See you next week". – Lesson learnt. Assume competence always. ❤❤❤❤❤ – – – #iamable #iamworthy #abilitynotdisability #differentnotless #thisboycan #thisboyslife #littlestoriesofmine #lovewhatmatters #honestmommin #downsyndromelove #downsyndromerocks #upsyndrome #downsyndromefamily #designergenes #dsdn #nothingdownaboutit #t21love #t21rocks #lovedoesntcountchromosomes #feelthefeelings #thismamaloves #mymagicalmoments #advocatelikeamother #boymomadventures #celebratechildhood #rawmotherhood #capture_your_stories #motherhood_squares #motherhoodslens #motherhood_squares

A post shared by Hayley & River | Down syndrome (@i_amriver_) on

 

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It’s Always Sunny in California. 📷 @shalyahevans

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If you have ever interacted with Macy then she has asked you, “What’s your name?”. In fact, she is the queen of this question and will ask every person she comes into contact with, even if she is passing you in the parking lot as you’re about to get in your car, or if you are walking on the opposite side of the sidewalk, or in line at a coffee shop or sitting at the table next to us in a restaurant, or taking our order at an @innout drive through. She does not shy away from human connection. Macy has taught me so much about what it truly means to be human and how important it is to see the humanity in those around us. Saying hello and asking someone their name is a basic act of human connection and kindness. These four small words have the ability to break down barriers, planting seeds for humanity to connect and relationships to grow. It’s a small phrase with a huge impact. It is the inspiration behind this new tee. So today, in honor of the first day of #downsyndromeawarenessmonth we’re so happy to introduce to you the, “Hi! What’s your name?” tee. When you wear it may you spread kindness and love and joy wherever you go. (Link in profile). Happy October friends. So excited to celebrate Down syndrome with y’all! #theluckyfew #downsyndrome #downsyndromelife #solucky #whatsyourname #spreadkindness #inclusionmatters #representationmatters

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viac foto tu: https://www.redbookmag.com/life/a29432535/beautiful-photos-of-kids-and-adults-with-down-syndrome/

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